March 2004

Julie Feldman MPH RD, Clinical Dietitian

As new things will begin to grow from the ground around us, spring is a time to remember your true potential.  To take notice of the beauty in the world around you.  To acknowledge that your true potential may not be being reached.  Spring is not a time for excuses.  It is a time to begin a new, start fresh, and do all that you can to Live Your Best Life.

Profile Therapeutics in association with a pan-european CF company is planning to launch Promixin, an inhaled antibiotic.  They dub this as the "intelligent inhaler" as it responds to a patient's individual breathing patterns to deliver a specific dose of medication.  This drug has been approved in 8 European countries, and they are expecting a commercial launch in the first half of 2005.

cMarket

cMarket has been contracted by the CF Foundation to develop a national program to increase fundraising support from its donors and sponsors via online auctions.  This will allow all of us to participate in CF fundraising events around the world via the internet.

Targeting the Genes

Targeted Genetics published positive results from a Phase II trial of its lead gene delivery-based cystic fibrosis product.  The trial resulted in statistically significant improvements in lung function, as well as no patient safety concerns.

Peninsula Pharmaceuticals has announced a phase I clinical trial of inhaled doripenem, a broad-spectrum antibiotic which many CF patients have taken orally to treat p aeruginosa and burkholderia cepacia. The company already has positive results from a pre-clinical in vitro study of dorpipenem in CF patients with common infection.

Fats are Fabulous

Harvard Researchers published in the New England Journal of Medicine results of their study that demonstrates the dramatically altered levels of fatty acids in the blood of patients with cystic fibrosis.  They believe that in 8-10 years, CF patients may be able to take doses of the good fatty acids, that are found in salmon, walnuts and flax seed, to help cure their CF by slowing lung damage.

Knowing this, I think it is time for a Salmon Recipe you can't resist.

Salmon filet (any amount)

cover with:

 lemon juice, lime juice, kosher salt, parsley flakes and parmesan cheese (right from the shaker)!

Bake in the oven at 350 until middle of fish is cooked through (25 min/pound of fish), then broil for 5 minutes to brown the top.

You will love this omega-3 packed dinner!