| Providence Hospital and Medical
Centers
October 2005 |
Monthly
Cystic Fibrosis Newsletter
Julie Feldman MPH RD, Clinical Dietitian |
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Thank Your Lucky
Stars
As we all watch and pray for the victims of Hurricane Katrina, a disaster
of this nature makes us all realize how lucky we are. Many people in the
CF community are reaching out to help your fellow CF patients in the damaged
areas , approximately 500 people. The TOBI Foundation has implemented HERT,
a special program designed to ensure that TOBI is accessible to all hurricane
impacted CF patients in the states of Mississippi, Louisiana, and Alabama.
The Foundation will work with patients, local pharmacies and other resources
to ensure patients receive TOBI as quickly as possible, regardless of where
the patient is currently staying. The Cystic Fibrosis Foundation Cystic Fibrosis
Foundation and the Cystic
Fibrosis Services Pharmacy are committed to providing ALL CF patients
affected by Hurricane Katrina with CF medications, regardless of their ability
to pay as well. Should you need CF medications, please call the CF Services
Pharmacy at (800) 541-4959. While the pediatric and adult
CF care programs at Tulane University are closed, CF patients in those areas
are allowed to visit clinics in any state. If you want to find out more information
check www.cff.org. |
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Super Powers for a Super Computer
IBM's newest supercomputer, Blue Gene/L, can fit in a bedroom closet and
can handle 9.3 trillion calculations per second. With so much potential
this computer is being challenged to solve super problems. The task at
hand is to predict the way that proteins act in our bodies. Protein malfunction
causes many diseases including Cystic Fibrosis. Mad cow and Alzheimer's
disease, and many cancers, are attributed to the unpredictable behavior
of proteins. The lead researcher on the project has 2 children with CF,
making this project quite real. |
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Easy Listening
Nick Pappajorgues thoroughly enjoyed working with the artists he
met while compiling the CD, saying, These kids are awesome people
and musicians. Monterey native Nick Pappajorgues is changing the
sound of cystic fibrosis. He is replacing the sound of labored breathing
with the sounds of life. The 22-year-old has accumulated an uplifting
compilation of music called So
We Can All Breathe Easy: Independent Artists Benefit Cystic Fibrosis. It
includes 14 energetic tracks from up-and-coming bands from all corners
of the country. One hundred percent of proceeds from Breathe Easy (at
$7 a CD) go directly to Cystic Fibrosis research. Pappajorgues personally
understands the powerful impact cystic fibrosis research can have on
an individual’s life. He and his sister, 20-year-old
Melissa, were diagnosed with CF while students at Monterey High. As recently
as a decade ago, their diagnosis would have restricted the siblings from
venturing too far from elaborate support groups and twice daily appointments
with friends or family, who would pound their back to loosen the excess
mucus from the lining of their lungs, http://www.grey-skies.com/and
chasing a dream with this CD.
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Enzymes that say STOP!
Brandeis University and the University of Texas have teamed up to discover
an enzyme that is integral in preventing bacterial infections in plants,
animals and humans, according to a study published in the Proceedings
of the National Academy of Sciences.
Using x-ray crystallography, the scientists were able to identify
the enzymes structure. They are hopeful that this discovery could thwart
the fear of bio warfare and also help patients with diseases like Cystic
Fibrosis live more worry-free.
You may be thinking that we already have antibiotics that prevent bacterial
infections, but this newly discovered enzyme works on a different pathway
than conventional antibiotics. Preventing the bacteria from increasing
its virulence or its ability to resist antibiotics is the goal of this
research. By preventing the bacteria from getting smarter we also improve
the effectiveness of current treatments. This is promising research for
any population plagued with bacterial infections.
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Carve a Pumpkin,
Eat a Pumpkin
The month of October is the best month of the year to
enjoy the beautiful to look at and delicious to eat pumpkins. From a
health standpoint, pumpkins are just plain good for you. They
are low in fat, low in calories, loaded with vitamins and minerals including
Vitamin A and potassium. Pumpkins are also high in fiber.
No-Bake 1 minute Pumpkin
Cheesecake
Ingredients:
2 g. cracker pie crusts |
Keebler mini graham cracker crusts/ |
1 - 8oz package |
cream cheese-regular or fat free |
1 can - 16oz. |
cream cheese ready made frosting(Duncan Hines-Pillsbury-Betty
Crocker) |
12oz. |
pumpkin puree |
1/2 cup |
All-spice...or more or less to your liking! |
1 tsp. |
baking powder |
Preparation Directions:
- First blend in large bowl cream cheese and frosting-blend until very
runny and creamy.
- Add in pumpkin and all spice.
- Put runny/creamy cheese pumpkin filling in graham cracker crust or
Keebler mini crust (6 per package).
- Place immediately in fridge and give about an hour to chill.
- Cheese will become firm and ready to serve!
- Finishing touch-sprinkle cinnamon on top for taste and garnish!
For a gluten-free variation, try adding a package
of vanilla pudding to above ingredients and put cheese pumpkin mix in
custard dishes instead of crusts!
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| All issues of Living
Your Best Life : |
May,
June,
Aug-Sept,
Oct,
Nov-Dec
2001
Jan,
Feb,
March,
April,
May,
Oct,
Nov
2002
Feb,
April,
May,
June,
Sept,
Oct,
Nov
2003
Jan,
Feb,
March,
April,
May,
Aug
2004
April, June,
July, Sept, Oct 2005
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